Responses, some poignant, to NIH stem-cell draft

Jul. 13, 2009
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WASHINGTON

Although many of the more than 49,000 comments received by the National Institutes of Health on their draft guidelines for embryonic stem-cell research are repetitive, some offer a poignant glimpse into the lives of Americans who don't want to see embryos destroyed in an effort to cure diseases.

"As a mother of a child with juvenile diabetes, I certainly hope we find a cure for this terrible disease in her lifetime," wrote one woman. "However, I am not willing to sacrifice the life of ONE CHILD, let alone thousands or even more in the name of research.

"Killing an embryo in the name of research is just as wrong as killing an adult or a newborn baby in the name of research," she added.

A young man who'd had diabetes since he was 2 and recently went blind from it seemed to want merely to tell his own story.

Talking about current research on blind rats, he said, "That is nice and all but seriously I don't care either way if blind rats can see or not, call me coldhearted. It's just that rats don't hold down jobs. Sure, as a blind person I can get a job. I'll get right on it as soon as I relearn how to perform all of the other tasks I used to take for granted, like the simple act of walking out the front door and crossing the road. Maybe some of the money used to conduct research on rats could be used to treat people."

The NIH published on its Web site at http://grants.nih.gov/stem_cells/web_listing.htm most of the 49,015 comments it received on the draft guidelines during a monthlong comment period that ended May 26. The agency eliminated all personal information from the comments and left out about 60 comments deemed "inappropriate" because they contained spam or "offensive language."

See our earlier story: Cardinal criticizes expanded NIH funding rules for stem-cell research.

Dr. Raynard S. Kington, acting NIH director, announced final guidelines July 6 that broadened the funding criteria in the draft to include research involving embryos donated before the new guidelines took effect or involving stem-cell lines developed in foreign countries, in addition to research on embryos created for reproductive purposes at in vitro fertilization clinics and no longer needed for that purpose.

Kington said about 30,000 of those making comments were opposed to the use of federal funds for embryonic stem-cell research. But he said those comments were disregarded because they were "deemed not responsive to the question put forth," which he said was how to make such funding, not whether to make it.

But that did not keep people from stating their objections to embryonic stem-cell research, in a wide variety of ways.

One sent along a poem called "Operation Creation: The Eve of Man's Manipulation." Its last verse read: "So slipping down the slope we go/To the deep abyss below/Design a mind, create a face/A polished, finished human race."

Another likened his opposition to the torture issue: "Just as the issue of torture should be framed by what is morally right instead of what is most effective, so the issue of stem-cell research should be framed on those same terms. Please give our children a legacy of caring for life instead of destroying it that the United States may regain a moral high ground."

One urged a reading of the Dr. Seuss book "Horton Hears a Who" and that attention be paid to its "underlying message: 'A person's a person no matter how small.' This responsibility needs to be taken very seriously if our leaders don't want to someday stand before God with the blood of children on their hands."

Another compared certain technological "advances" to the Nazi experiments under Adolf Hitler: "Shame on this country for going the road of Nazi Germany in doing experimentation on human life. The success with adult stem cells far outpaces the proclivity of cancer from using embryonic stem cells. Hooray for the future of the perfect human!!"

Hundreds of the letters contained identical messages and seemed to have been generated from one of three sources -- the Juvenile Diabetes Research Foundation, the Genetics Society of America or the U.S. Conference of Catholic Bishops and its affiliated organizations.

As one opponent of embryonic stem-cell research said, "These things are copied and pasted because I'm at work and don't have time to write basically the same thing in a different way. I agree with all of these things and feel that they need to be rectified ASAP."

The writers using language from the diabetes foundation began their comments with the words, "For those of us with a personal connection to type 1 diabetes, these actions have renewed our hope for a cure."

But not every supporter of the diabetes foundation backed the foundation's stand on embryonic stem cells.

"I think adult and cord stem cells is fine. But PLEASE stay away from the embryonic stem cells," wrote one person. "There are many of us who support the JDRF but do not support embryonic stem-cell research. Do not disregard those of us who are pro-life!"

There is ample amounts of

There is ample amounts of scholarly literature available. Look to the Church for guidance. Don't get sucked into things like test tube baby science either. First of all there is ample reasoning why its wrong. And the fact is that may fertlized ensouled human eggs are either destroyed or experimented or frozen forever (ironically "OctoMom" elected for implantation of all the eggs (not saying this was right) in order that the fertilized ensouled human eggs not be killed) And I firmaly agree that she should not have gotten involved in this inhuman stuff in the first place. Pray for all concerned.

The real problem is the

The real problem is the pseudo science that the Vatican uses in its argument against stem cell research. The Vatican also takes a lot of license with past history of Church thinking on ensoulment.

The first problem begins with how the Vatican selects "scientists" to the Vatican Academy of Sciences. These people are first chosen for their loyalty to what the curia wants to hear and not necessarily for their faithful adherence to the scientific method. The Bishops had the same problem when they chose special psychologists out side of their individual dioceses' to treat pedophiles. Had they in the 1960's, consulted their own Catholic Social Services composed of men and women that attended Catholic Universities, as I did in Medical School, they would have been given the advise that Pedophilia was not curable as was taught me by the text books and the Professors of that day in Psychiatry classes. No, the Bishops wished a different standard for clergy and sent them to "scientists” that were willing to tell the Bishops what they wanted to hear that "these men could be treated and even cured!" Had they sent offending clergy to the Social Workers in their own Catholic Social Services, besides dealing with professionals with the most up to date training, they would have dealt with men and women who had children and grandchildren at risk from allowing the passing on of these criminals from parish to parish, diocese to diocese and country to country.

Currently no scientist that work in embryonic stem cell research are on allowed on the Vatican Academy of Science, as Galileo was not given even a fair hearing in his time. The Bishops by their very statements of ensouled embryos seem to be contradicting themselves, as somewhere around 70% of all blastocysts produced by women under no hormonal influence are simply discarded by their own bodies. This would make nature the biggest abortionist of record. Would a Great God allow natural “abortion” of 70% of His ensouled creation? The current Roman Catholic authorities will tell you that the Church has always taught life and ensoulment begin with fertilization, yet both Augustine and Thomas Aquinas did not see it this way. There were even some Popes who stated that abortion was OK until the time of quickening (first movement of the fetus at about 12 weeks.) So both history and science contradict what so many of the powerful leaders of our Church are saying. Furthermore, we know that a very complicated mammal, Dolly the sheep, was cloned without the participation of 2 gametes. This would seem to indicate that in the years ahead humans could and probably will be cloned. When will these people be ensouled? It could not be at fertilization (which does not take place), or will it be the Church's stand that these humans will never develop a soul even though they have all the Human DNA and function fully as any other human?

There is a false argument used that a fertilized zygote contains all the DNA that is human, therefore it is a human; so does a simple liver or skin cell contain all the human DNA! Yes these cells live too, but they are not in themselves ensouled! A blastocyst, which is a multi-celled structure forming, after the Zygote phase is akin to a seed. Like a seed some implant in the fertile soil of the Uterus but most don’t implant or survive. Any child can distinguish that a seed dose not have the magnificence of a tree! Yet without the careful observations of the embryologist’ examination of natural phenomena, it is impossible to gain the understanding of these structures, and pronouncements about them would have the weight of telling an astrophysicist that the Earth is the center of the Universe.

Embryology is a wonderful science that produces an awe in the men and women who study it and observe phenomena as it happens. The Holy Spirit told us that He would be with us until the end of time. No where does it say or mean that He will magically only be with bishops or members of the Roman Curia. In fact when these Church leaders fail to listen to the scientists of the day, like they did in the times of Copernicus, they seem to fail to listen to this great Spirit for purposes of trying to control men rather than serve humanity. It is worse now than in the time of Copernicus because our leadership is interfering - either irrationally or from Blind Faith or from reason of control or a combination of all - in the understanding and the cure of disease that is given to those listening to the Spirit with the gifts of scientific minds. This is either megalomania or irrationality or sin, or a combination of some or all of the above, on the part of our own Roman Catholic leadership.

May we have more Peace and Understanding from the Holy Spirit,

R. Dennis Porch, MD

Well stated and well

Well stated and well written...yet your response, as any of the others, begs the question; what is the soul, is it more than a quess. In my Jesuit education it was defined as 'life giving substance', whatever that means or is. That also begs the question for all matters of life having a 'soul'. To argue ensoulment is folly, since no one has seen one or proves its existence, but we all talk about 'soul' as if it is a given, as if we know of what we speak. Is there anything worse than continued opinion accepted as fact. Thusly, to argue ensoulment makes no sense whatsoever, since the pseudofact has not been established as fact...only accepted as such. The Church has an history noted by historical-critical and analytical, but ignored by the devotional of continued falsehoods: look no further than the 'donation of Constantine', 'pseudo-Isadore decretals', 'Symmacus' these are all forgeries continued into present through their acceptance as writ into Canon Law. The issue of Church on Copernicus is but a brief on a lengthy legacy which insists on presenting world as static rather than evolving, and certainly not dynamic e.g Pius IX and Pius X. Carl Sagan stated it best; religion is reactionary. It has always resisted change and selects into its hierarchy only those who have affirmed an oath of submission, obedience, and loyalty to its counterenlightenment position.

Thank you Walter, your

Thank you Walter, your comment is stimulating and well thought out.

R. Dennis Porch, MD

I am a 47 year-old

I am a 47 year-old insulin-dependent diabetic and a faithful Catholic, who finds himself terribly morally and ethically torn between trying to be faithful to the teachings of the Church and also to being true to myself.

The only hope I have to stay alive past a few more years is either to get an organ transplant from someone who is deceased who matches me, which is like trying to find a needle in a haystack in the middle of a Kansas tornado or hopefully a stem-cell transplant.

I wish those who constantly condemn stem-cell research would consider that there are those of your brothers and sisters in the faith who will die too soon without either an organ transplant or a stem-cell transplant, PLEASE think about this before you condemn someone like myself to an early grave.

I am presently studying to be a Lay-Minister in [the diocese]. I am enjoying being able to do something for my Church, but without the chance to benefit from a stem-cell transplant a few years down the road or the aforementioned organ transplant I won't get to fulfill my calling and that would be a terrible thing to have to contemplate.

Your Faithful Brother in Christ

David C. Gross

snowdrop, the catholic church

snowdrop,

the catholic church has never made the claim that
the fertilized egg is ensouled,

the catholic church position is to protect human
life from conception through natural death,
it avoids the concept of when the fetus is ensouled
because it can not answer that question.

to assume the fertilized egg is ensouled is to assume
that the method God created results in millions of
souls that never acheive a life, not though the actions
of men, but through the process God created,
approximately half of all fertilized eggs never
implant and develop

therefore it is unlikely that fertilized eggs have
souls

the catholic church teaching is that it is immoral
to destoy human life, but it does not claim that you
are killing a person,
of course, many individuals extrapolate to that conclusion
and the church makes no effort to correct them,

Anonymous, Of course I agree

Anonymous, Of course I agree with you that the Church has not officially taught when enrollment takes place, but its insistence that the use of the Birth Control pill is an abortive agent is pretty close. No one knows when a soul develops, I would suppose since mind is a subset of soul that it could not be at least until some sensuous parts of the brain begin to develop. We know that the earliest development would be the sense of taste at about 12 weeks gestation. Of course this does not mean that in any sense a mind has yet developed, but it is the earliest time that there is any sense of true brain development. The mind is something quite different as it develops in that never stops in its ability to improve itself as long as the person involved is inquisitive. It seems that the there are those in the Church that look upon this inquisitiveness as something that is akin to disobedience when actually it the epistemophilic instinct that allows humanity to grow and develop. However when the church teaches that one reason that the BC pill is so wrong is that it sometimes acts to decrease the ability of the blastocyst to emplant in the uterus, it seems to me to be not genuine for the reason I gave above in that way over 50 % of all blastocysts do not naturally emplant. We also know that depression, increased exercise, decreased nutrition, and many types of medications also decrease the uterus' ability to emplant a blastocystic structure. The medical definition of abortion is the separation of fetus from the uterus. Many of us feel that we would not want to participate in the separation of fetus from the uterus, but we are termed as accepting abortion even if we believe in the BC pill or medications that cause the Uterine lining to slough preventing pregnancy (the morning after pill.) I think that the Church has not paid any attention to the scientific mindful observations of so many men and women that in truth are as capable of accepting the Holy Spirit as any Bishop.

The Church does accept their own form of "natural" birth control that is in fact much less natural and much less predictable than other forms. Since it is the observations of nature that truly are able to define what is happening in the natural world, I submit that the Bishops are in grave error when they refuse to take into consideration the scientists that are working in the field, but rather use their own pseudo scientists that must accept the religious definitions of the Bishops to describe scientific phenomena. These men are rejecting the scientific method of attempting to define truth. Truth IS one and I maintain that the Holy Spirit reveals His truth to Scientists even as He does to Bishops and for either side to say we know THE Truth is preposterous.

We should understand that it is the theories of science that has allowed the wonderful technological development during the past 100 years. The Bishops are not being faithful to truth when they fail to even listen to what is being observed for fear of having to CHANGE their own understanding of what the Spirit is telling us all. This is pure and simple is megalomania on the part of these men. This is why a totalitarian mind set can not lead to truth in Church teaching. This totalitarian mind set is part of a Man made not a God made structure.

My we try to understand each other?

R. Dennis Porch, MD

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